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Knowledge and information are critical tools to affect early diagnosis in pituitary disease. Join Dr. Lewis Blevins and Jorge D Faccinetti cofounders, as they navigate the wonders and complexities of pituitary conditions. Each episode brings conversations with information and experiences from expert professionals and people living with these challenging disorders.
Episodes
Tuesday Sep 27, 2022
S8E21: Hair and hormones
Tuesday Sep 27, 2022
Tuesday Sep 27, 2022
An informative discussion on the effects of hormones on hair loss, a common occurrence for people dealing with pituitary conditions. In this LIve-talk session, Dr. Blevins discusses the facts and the myths.
Tuesday Sep 13, 2022
S8E20: On this live talk session: a path to better systems
Tuesday Sep 13, 2022
Tuesday Sep 13, 2022
On our Live-talk program today, a fascinating, nothing left on the table, discussion about a variety of topics that affect pituitary patients; from access to medication and therapies to problems with social media and misinformation to the complexities of diagnosis and refuting diagnosis to the role of the doctor and the patient in getting involved to solve many of these challenges. This is an eclectic, honest, unscripted look at these matters from the physician and patient perspective, resulting in various points of view necessary to advocate for better systems.
Tuesday Aug 16, 2022
Tuesday Aug 16, 2022
Today's podcast focuses on an opportunity to learn about a group of rare diseases that share a common condition with pituitary disease. Histiocytosis or histiocytic disorders are a group of rare diseases that occur when there is an overproduction of white blood cells known as histiocytes that can lead to organ damage and tumor formation. DI impacts almost 50% of Histiocytosis patients and 35% of pituitary patients. I am pleased to welcome three advocates Deanna Fournier, Executive Director of the Histiocytosis Association; Kathleen Brewer, founder/president of the Erdheim-Chester Disease Global Alliance; and Claudio DiGirolamo, President of the Histiocytosis Association of Canada, to talk about these diseases and their advocacy efforts.
We have also written extensively about DI and have recently devoted a live talk show on the subject. You can review that content here.
Friday Aug 05, 2022
S8E18: Residual and recurring Cushing’s
Friday Aug 05, 2022
Friday Aug 05, 2022
It's always fascinating to listen to two of the recognized experts and leading clinicians in Cushing's disease discuss their experiences with the disease and patients. In this "Live Talk" session, Pituitary World New's innovative program for education and awareness, Dr. Kevin Yuen and Dr. Lewis Blevins bring an intimate, revealing look at their approaches to Cushing's disease and syndrome. The discussion focuses on their experiences and how they think about their patients, and the options they have available for treatment. Listen and learn their views on each available drug to treat the disease and their rationale for recommending treatment options. And don't miss the discussion on access to those medications, including insurance coverage issues, towards the end of the session. Enjoy!
Monday Jul 18, 2022
S8E17: Pituitary dysfunction after Traumatic Brain Injuries (TBI)
Monday Jul 18, 2022
Monday Jul 18, 2022
In this podcast, Dr. Lewis Blevins discusses traumatic brain injury (TBI) and hypopituitarism with Dr. Tamara Wexler, a nationally recognized neuroendocrinologist and expert in pituitary dysfunction after a brain injury. They focus on the many aspects of assessing pituitary function in people with traumatic brain injuries. Dr. Wexler's research efforts focus on pituitary dysfunction after brain injury. Don't miss this fascinating discussion. Click here for more PWN articles on TBI.
Monday Jul 11, 2022
S8E16: Advocacy and Cushing’s: a chat with the CSRF
Monday Jul 11, 2022
Monday Jul 11, 2022
I'm happy to welcome Leslie Edwin, president of Cushing's Support and Research Foundation (CSRF), to our microphones. The CSRF is a leading Cushing's disease and syndrome patient support organization. We talked about the opportunities and barriers for Cushing's patients and advocates. Geri Brown, a Cushing's patient and member of the CSRF, also joined us to talk about her perceptions as a new group member. Our discussion provided a great deal of patient information on the CSRF programs and plans.
Friday Jul 01, 2022
S8E15: Emotional well being, mental health and the pituitary
Friday Jul 01, 2022
Friday Jul 01, 2022
Mental health and emotional wellness are essential topics for pituitary patients, their families, and friends. This on-demand session from last Thursday's live-talk program focuses on the challenges and opportunities when considering these issues. This is a compelling discussion from the psychological and the medical point of view about the importance of putting people's mental and emotional well-being center stage when considering the treatment of endocrine disorders. PWN contributor and author Linda M Rio chats with Dr. Lewis Blevis and myself about tools and resources and the need for more research and work in this critical pituitary patient care and wellness area.
Monday Jun 27, 2022
S8E14: Medical decision making
Monday Jun 27, 2022
Monday Jun 27, 2022
Decisions made by doctors and their patients can be some of the most complicated, difficult decisions to make. They cover choices of treatment, medications, desired outcomes, and a host of complex variables that play a role in a person's health. It is perhaps one of the least understood aspects of the doctor-patient relationship. This session focuses on the factors that influence medical decision-making, the impacts those decisions carry, and how the practical clinical aspects of these choices affect our everyday lives. We also cover interesting examples from Dr. Blevins' clinical practice and other essential elements such as non-medical factors like insurance and other payor issues, the role of computers and artificial intelligence, treatment guidelines, and the ever-present Google search.
Tuesday Jun 14, 2022
S8E13: The semantics of pituitary conditions
Tuesday Jun 14, 2022
Tuesday Jun 14, 2022
Semantics, or by definition, the way we relate to different meanings of words or other symbols, are essential to medicine and pituitary medicine. The words we use to communicate and inform are critical. In our session today, we discuss the semantics of pituitary medicine and underline the importance of describing things accurately. Brain tumors and pituitary tumors are they the same? What is the difference between diabetes mellitus and diabetes insipidus? How about adrenal and Addison's disease? And what is the discussion between NETs (neuroendocrine tumors) and pituitary tumors? Are they the same should they be jointly classified? Our session today dives into these subjects and a few other pearls you don't want to miss. Also, we welcome two callers as they share their views and challenges with interesting comments.
Friday Jun 10, 2022
S8E12: The world of endocrine nursing: a chat with Dr. Chris Yedinak
Friday Jun 10, 2022
Friday Jun 10, 2022
In this podcast, we dive into the world of endocrine nursing with Dr. Chris Yedinak from the Oregon Health and Science University. Chris is a family nurse practitioner and clinical research trials coordinator who oversees patient care at the OHSU Northwest Pituitary Center. Educated in Sydney, Australia, Chris has a background in psychiatric nursing care and tertiary education. Her research interests include pituitary pathology and Cushing's disease. For the last five years, she has specialized in neuroendocrine testing and pre-and post-operative care of patients with neuroendocrine and pituitary diseases. Nurses play a critical role in the care of patients with pituitary disease and we are delighted to bring you this wonderful conversation.