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Knowledge and information are critical tools to affect early diagnosis in pituitary disease. Join Dr. Lewis Blevins and Jorge D Faccinetti cofounders, as they navigate the wonders and complexities of pituitary conditions. Each episode brings conversations with information and experiences from expert professionals and people living with these challenging disorders.
Episodes
Tuesday Jun 07, 2022
S8E11: A conversation with Amryt’s new president for the Americas, Sheila Frame
Tuesday Jun 07, 2022
Tuesday Jun 07, 2022
We caught up with Sheila a few weeks ago at the Acromegaly Community Conference near San Francisco. We had a captivating chat about Mycapssa (oral octreotide), the new and only oral medication for the treatment of Acromegaly, where we learned about the drug since its introduction 18 months ago. But we also wanted to know about Amryt, a newcomer to the US and soon to all the Americas. We talked about Amryt's start in Dublin, Ireland, just six years ago, its philosophy, brand, and plans. We also took advantage of Sheila's extensive experience in healthcare to ask about her views. We touched on rare disease diagnoses, the state of endocrinology drug development in the US and globally, access to medication, patient support, and the burden of dealing with insurance issues, specifically those related to prior authorizations.
Monday May 30, 2022
S8E10: Valuable insights from actual pituitary medicine practice
Monday May 30, 2022
Monday May 30, 2022
This session presents more musings based on the actual practice of pituitary medicine. These insights derived from real cases include discussions of issues with Growth Hormone and the problems physicians have when they prescribe it. You don't want to miss this enlightening segment. Also, in the session, the recent Covid-19 surge and dexamethasone dose adjustments, and an interesting empty sella with an enlarged pituitary gland, you might find insightful. On the "be careful of what you read on the internet" front, a few postings on Facebook on gadolinium and the connection between mold and pituitary tumors misinformation flying around on the internet. Lastly, Dr. Blevins muses about adrenal and pituitary Cushing's from a recent case. We close with a look at telemedicine and discuss some changes that may not be that good for patients regarding the evolving issues about access to treatment by specialists across state lines. Stay tuned for more insights on this vital telemedicine access issue and how to help us advocate for patient choice and access by experienced specialists, regardless of where you live.
Monday May 23, 2022
S8E9: Live-Talk Session 6: May 19, 2022 - Biotin’s effect on lab tests
Monday May 23, 2022
Monday May 23, 2022
Dr. Lewis Blevins talks with guest Dr. Saleh Aldasouqi, Professor, Chief, Division of Endocrinology and Metabolism, and Clinician at Michigan State University Specialty Center, Endocrinology Clinic, about Biotin use and its interference with laboratory tests. This is definitely something you need to know to plan discontinuance of the supplement to allow for lab testing. You won’t want to miss this discussion. To learn more about this issue you can access the links we included in the article related to this podcasts
with more details on the issues with Biotin use and how it can lead to misdiagnosis.
Friday May 13, 2022
S8E8: Advocacy: patient needs and support
Friday May 13, 2022
Friday May 13, 2022
Our live talk session from May 12 is now available on-demand with guests Jill Sisco, president of the Acromegaly Community, and Sharmyn McGraw from the Pacific Neuroscience Institute. This was a fascinating perspective on the challenges and opportunities for patient advocacy programs with two of the leading patient advocates in the world of pituitary disease, specifically Cushing's and acromegaly. We talked about the voice of the patient initiatives, support groups, unmet needs, access to medication, and new initiatives to participate in making life better for people dealing with pituitary disease. Don't miss it, and join us next Thursday for another Live Talk session!
Monday May 09, 2022
Monday May 09, 2022
A highly informational "live-talk" session from Dr. Blevins. The first segment covers the indications for pituitary surgery for patients with pituitary adenomas. In the second half of the program, he discusses critical information for patients with Central Adrenal Insufficiency due to hypothalamic or pituitary disease. Some of this information is applicable to those who have primary adrenal insufficiency, which occurs when the adrenal glands are removed.
Monday May 02, 2022
S8E6: LIVE TALK - Complications of surgery and symptoms and signs
Monday May 02, 2022
Monday May 02, 2022
If you missed our live broadcast of Pituitary World News's new radio-style call-in show, here's your chance to listen to the recording. In session three, we cover the many possible complications from pituitary surgery in terms of pituitary function and the anatomy around the gland. This is a comprehensive review of potential consequences that all pituitary patients, whether they have had, or are about to have surgery, should know and discuss with their surgeons. The second part of the session offers a fascinating discussion of symptoms and signs of pituitary disease and hormone deficiencies. Finally, Dr. Blevins will discuss a few cases of nonspecific symptoms and signs of pituitary disorders and how, on occasion, those have proven to be due to something unrelated to pituitary disorders.
Sunday Apr 17, 2022
S8E5: Diabetes Insipidus and a discussion about endocrine tests
Sunday Apr 17, 2022
Sunday Apr 17, 2022
In our second Live Talk session, Dr. Lewis Blevins discusses the normal ranges of endocrine lab tests and shares examples from his pituitary practice. Also, our guest this week, Pat Gildroy, who manages the Diabetes Insipidus Facebook group, Got DI, joins us for a fascinating discussion about this condition.
Friday Apr 08, 2022
S8E4: Dr. Manish Aghi talks about headaches and pituitary tumors
Friday Apr 08, 2022
Friday Apr 08, 2022
In the first Pituitary World News LIVE TALK radio-style program, our guest Dr. Manish Aghi discusses the many facets of headaches and pituitary tumors. If you missed the live broadcast, here is the show's podcast. Tune in to LIVE TALK every Thursday from 3:00 pm PST - 6:00 pm EST for the opportunity to call in and participate in these live conversations with pituitary experts and stakeholders.
For more information on LIVE TALK and how to join the studio every week, visit pituitaryworldnews.org.
Monday Feb 21, 2022
S8E3: A case of a pituitary lesion (hemangiopericytoma)
Monday Feb 21, 2022
Monday Feb 21, 2022
In this podcast oriented to physicians, Dr. Lewis Blevins talks about a case of a patient with a pituitary lesion called a hemangiopericytoma invasive in the right cavernous sinus. Although the content is technical, patients and other interested parties may find the discussion interesting.
Friday Feb 18, 2022
S8E2: Recorlev (Levoketoconazole)
Friday Feb 18, 2022
Friday Feb 18, 2022
In today's podcast directed to physicians, PWN co-founder Dr. Lewis Blevins discusses the drug Recorlev® (levoketoconazole) recently approved by the FDA to treat endogenous Cushing's Syndrome. While this podcast contains medical and technical terminology, we encourage patients to listen to it and discuss it with their physicians.