My conversation with Risa Heidt, who will be riding her bike from Canada to Mexico to promote awareness of rare pituitary diseases: Marisa "Risa" Heidt, diagnosed with acromegaly (a rare disease of the pituitary gland), in 2018, is undertaking this 1845-mile challenge starting this September 11. Click here for more details and what you can do to help.
In today's podcast, we welcome Claire Murphy, Director of the Orphan Drug Congress, to talk about this important, innovative event. The Congress brings together leading industry, government and regulatory authorities, patient advocacy groups, payers, investors, and solution providers, advancing orphan drug development and improving access to life-saving therapies.
With the newly announced launch of the phase 3 trial on Paltusotine, Crinetics new nonpeptide oral drug candidate for acromegaly, we asked Dr. Alessandra Casagrande, their new Medical Science Director, to give us her perspectives on this study.
We recently sat down with members of the acromegaly community to discuss their treatment journeys and the lessons they learned along the way, including how they advocate for themselves and how their experiences can help others do the same. We heard about their journey from the initial diagnosis to treatments, and life with acromegaly during the COVID-19 pandemic. You don’t want to miss this engaging conversation in our latest podcast sponsored by Chiasma.
Rachael Clare was diagnosed with a pituitary macroadenoma at age 21. Now at 28, in a frank and revealing chat, she shares her experiences and struggles with diagnosis and living with hypopituitarism. Her blog, The Mass and Me, gives us an honest look at her story to help bring more awareness to the challenges of this disease.
Our section for physicians and health care professionals launches today with a podcast by Dr. Lewis Blevins that discusses ten fascinating cases of patients with hypercortisolism. We hope this section will serve as a platform to share important information, which we hope will lead to a broader understanding of pituitary disease. We invite you to comment and provide feedback to share the teaching points that this type of involvement can provide to the awareness and treatment of a disease.
Stay tuned for much more from Dr. Blevins and colleagues. We encourage you to contact us to share interesting cases and information.
How is the emerging knowledge of hypercortisolism influencing how Cushing's disease and syndrome are understood and affecting the practice and those working on the front lines doing the work and caring for patients? In this podcast, Michael Evans, Director, Commercial Insights, Learning and Development at Corcept Therapeutics, and Lewis Blevins, M.D., Medical Director of the Californian Center for Pituitary Disorders at UCSF and Pituitary World News Co-founder, consider the timeline and evolution of our understanding of the disease as the last ten years, has had a significant impact and brings a new set of challenges to suspect and recognize these conditions earlier.
At Pituitary World News we are committed, some would say obsessed, with the need to reduce the time it takes to diagnose pituitary disease. This podcast offers a candid discussion about this and many issues of importance to people dealing with pituitary disease. We caught up with Spanish endocrinologist Dr. Javier Salvador, professor at the Universidad de Navarra last year in Bilbao, Spain. This is our chat. I hope you enjoy it as much as I did.