The Pituitary World News Podcast

We recently sat down with members of the acromegaly community to discuss their treatment journeys and the lessons they learned along the way, including how they advocate for themselves and how their experiences can help others do the same. We heard about their journey from the initial diagnosis to treatments, and life with acromegaly during the COVID-19 pandemic. You don’t want to miss this engaging conversation in our latest podcast sponsored by Chiasma.

A discussion of acromegaly and what to do with medical treatment during pregnancy and the options available today.

Rachael Clare was diagnosed with a pituitary macroadenoma at age 21.  Now at 28, in a frank and revealing chat, she shares her experiences and struggles with diagnosis and living with hypopituitarism. Her blog, The Mass and Me, gives us an honest look at her story to help bring more awareness to the challenges of this disease.    

Our section for physicians and health care professionals launches today with a podcast by Dr. Lewis Blevins that discusses ten fascinating cases of patients with hypercortisolism. We hope this section will serve as a platform to share important information, which we hope will lead to a broader understanding of pituitary disease. We invite you to comment and provide feedback to share the teaching points that this type of involvement can provide to the awareness and treatment of a disease.

Stay tuned for much more from Dr. Blevins and colleagues. We encourage you to contact us to share interesting cases and information.

How is the emerging knowledge of hypercortisolism influencing how Cushing's disease and syndrome are understood and affecting the practice and those working on the front lines doing the work and caring for patients?  In this podcast, Michael Evans, Director, Commercial Insights, Learning and Development at Corcept Therapeutics, and Lewis Blevins, M.D., Medical Director of the Californian Center for Pituitary Disorders at UCSF and Pituitary World News Co-founder, consider the timeline and evolution of our understanding of the disease as the last ten years, has had a significant impact and brings a new set of challenges to suspect and recognize these conditions earlier.

At Pituitary World News we are committed, some would say obsessed, with the need to reduce the time it takes to diagnose pituitary disease. This podcast offers a candid discussion about this and many issues of importance to people dealing with pituitary disease. We caught up with Spanish endocrinologist Dr. Javier Salvador, professor at the Universidad de Navarra last year in Bilbao, Spain. This is our chat. I hope you enjoy it as much as I did.

Today, a brief informal discussion of Cushing's disease issues from cases, articles, and experiences with his patients.

We recently had a chance to sit down with Chiasma Inc.’s Senior VP of Clinical Development & Medical Affairs, Dr. Bill Ludlam, to discuss his career and his work in rare diseases. Dr. Ludlam played an integral role in Chiasma’s acquisition of the first and only FDA approval for oral somatostatin analog (SSA) octreotide, called MYCAPSSA. We discussed the influences that drive Chiasma as an organization and Dr. Ludlam personally, as well as the processes that contributed to the development of MYCAPSSA. Don’t miss this engaging conversation.

A compelling, detailed account of a pituitary patient’s experience with COVID-19 everyone should listen.  As the virus takes hold in what is undoubtedly the worst phase of this pandemic, we urge you to follow all the guidelines provided by the health authorities:  wash your hands often, wear a mask when you are around other people, avoid crowds, and maintain the appropriate distance.

Not surprisingly, COVID-19 appears to have significantly impacted pituitary patients' access to healthcare.  Our brief survey elicited information from respondents on their experiences and attitudes towards obtaining healthcare via telemedicine.  Dr. Blevins shares the findings in this enlightening podcast.