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Knowledge and information are critical tools to affect early diagnosis in pituitary disease. Join Dr. Lewis Blevins and Jorge D Faccinetti cofounders, as they navigate the wonders and complexities of pituitary conditions. Each episode brings conversations with information and experiences from expert professionals and people living with these challenging disorders.
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Monday Apr 29, 2024
S10E5: The FDA listens to acromegaly patients
Monday Apr 29, 2024
Monday Apr 29, 2024
Today's podcast covers my conversation with Jill Sisco, president of the Acromegaly Community, about the recent meetings with the Food and Drug Administration (FDA), the US governmental entity responsible for approving new medications. Our conversation focuses on the original meeting held in 2021 and a recent listening session where the AC provided additional feedback to the FDA. These meetings help ensure the FDA considers patient's experiences, needs, and expectations as they provide drug development guidance to pharmaceutical companies. You can read the original report here.
Jill also briefly mentioned during our chat the "Faces of Hope" initiative they undertook a few years ago. Here's a link to that photographic essay. Worth a look!
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